Atypical Parkinsonism Diagnosis 2017

My Multiple Identities and DNA Make Me Who I Am

Update – February 23, 2018: Nembhard Family History Nembhard Name Meaning from the Germanic personal name Nan(d)hart, composed with nand ‘daring’ + hard ‘hard’, ‘strong’, nickname for a greedy or grasping person, from Middle High German nemen ‘to take’ + hard ‘hard’. Source: Dictionary of American Family Names @ 2013, Oxford University Press.

Russell Grant Britain’s celebrity astrologer www. express.org.uk.

Taurus Apr 21 – May 21:  Wednesday 21.2.2018: You enjoy spending time with people who share your love of art, beauty and culture. You might consider taking a trip together to visit galleries and museums. A fresh involvement kindles an enthusiasiastic energy that may, in time, be a moneymaker.  Thursday 22.2.2018: Stop feeling so intimidated by the competition. You’re more talented than you realise. The sooner you start celebrating your own accomplishments, the more successful you will become. Maintaining the status quo will just keep you trapped. Friday 23.2.2018: Finding cash to put your plans into practice will be difficult. You may have to get a second job or better paid work. Openingis involving journalism, publishing or education are possibilities. You have a way with words that makes people want to learn more.

Cure Parkinson Association.
I was lying in bed listening to BBC Radio 4 Appeal when my attention was drawn to the mention of Parkinson’s disease. For me the word Parkinson is/was like a red flag to a raging bull because of the effects the disease have had on my Family when I was younger. Therefore Parkinson’s is embedded in my DNA and although I am better equipped to deal with it now, before it was a nightmare. I listened to every words uttered by Gavin Hastings as he described the signs and symptoms of Parkinson’s as they resonated with me. I can empathised with Gavin Hasting and his family when he talked movingly about the impact on his family. When his wife was diagnosed with the condition at the age of thirty nine (9) years old. My dad was under fifty (50) years old.

I know almost everything there is to know about this dreaded Parkinson disease because of my own personal experiences from an early age. My family that is my dad, and younger uncle in particular were affected by Parkinson’s. And this had very devastating effects on their lives and that of their families. Worse was to come for me when I discovered at the age of twenty (20+) years that the only reasons I’d underachieved throughout my school life and until the discovery, was that I have Parkinson’s disease. I guess I should have known earlier, about the evidence, staring me in the face, but I didn’t.

Dad took sick and was signed off from work when I was still at Primary School and died when I was twenty (20) years old. By that time I was a mother, two times removed, after getting pregnant before I finished my Secondary School education. I helped mum with caring for my father, especially in the last years of his life. Because I had become a parent and a stay at home mum. Whilst mum took on dad’s roles of main bread winner, farming and carer for dad. Therefore I had all the time in the world to witness and identify the signs and symptoms of Parkinson’s that were manifested in my daily life.

So from an early age, I started experiencing some of the ailments that are associated with Parkinson’s disease. In later life when I realised that depression was closely linked to Parkinson, I could better understand my changing mood swings. When Parkinson’s decided to take a hold on me and there was nothing I could do about it. Sadly for me if I had all this knowledge that I have now, at my disposal my life might have turned out differently? That’s another reason why I make the most of my opportunities after coming to the UK and attended Lambeth College 1997-1999 and the Open University  2004-2010.

I grew up being very angry about having the bad luck of being the only surviving girl in the family. Only to be struck down with the same afflictions which rendered my dad useless in every sense of the word for many years of his short life. Unlike dad who had his God, along with his Christian beliefs to see him through those difficult years in his life. I had no one to turn to with my dilemma. I became a rebel and blamed dad’s God for failing us. I just could not understand how the God that dad loved, worshipped and dedicated his every existence to, could allow dad to suffer the way he did? Although I had the nerves to question God’s handling of the matter.

My dad’s faith in his God never faltered. In retrospect I am more than glad that dad was steadfast in his beliefs. I am happy to say, I inherited some of his traits that are priceless and make me the person, who I am today.  By this time I have two (2) children so have to stop feeling sorry for myself. And focus on getting on with this business called life. Fulfilling my roles and responsibilities as a single mother, without much prospects for the future. I set about being accountable by making some life changing decisions to benefit my children and myself.

Without realising, I was already applying the early intervention strategies I was taught from an early age in Primary School. This was part of the survival skills that would prepare me for the adversities and challenges that I was to encounter later in life.  I was prescribed Valium in my teens to control the signs and symptoms of my hidden disabilities which I prefer to call my Parkinson’s. I made my own self-diagnosis that I had inherited my dad and uncle’s condition of having Parkinson’s disease. But I was only affected under certain situations when the signs and symptoms manifested themselves.

There was absolutely nothing I could do about it, so had to live the best way I could and manage. I knew without a doubt from I was twenty (20) years old that I have PARKINSON’S DISEASE.

Updates – 23.2.2018: I have discovered from research that I have what is known as Atypical Parkinsonism. A condition that is hard to diagnose and even harder to treat. Therefore I have taken ownership of embracing my disabilities. I have tried to live my life around the condition ever since. I have always let it be known that I have multiple disabilities even before I gained the knowledge to identify them from a medically diagnosed theoretical view point.

With knowledge comes wisdom and power. I’ve benefited enormously from the enhanced knowledge gained over the years as I have studied and being given opportunities to change my life. But surprise of surprises anyone with my conditions of disabilities are opened to DISCRIMINATIONS because of ignorance.

Updates – 23.2.2018: That’s why my life will remain an Open Book forever, even after I am long gone, like my father. I have a diagnosis of Chronic Anxiety on the 18th July 2006 from Dr I Ferreira of Landor Road Surgery. Here are more of the proof that I will copy from WCS now LEYF Staff Personal Records of 13.06.2009.

Declaration of Health: a) Are you in good health at preswent? If not, state nature of illness: Response: Yes, however have signs and symptoms of inherited PARKINSON’S DISEASE. b) Are you presently attending the doctor or hospital for any reason? Response: Annual PAP SMEAR because I had an abnormal Test about 5 years ago. c) Details of any hospital admission within the last 2 years: Admitted at the A&E for a few hours in October 2008. d) Do you have treatment prescribed regularly by the doctor or a hospital? No. e) Have you ever suffered from nervous or other similar illnesses? Chronic Anxiety symptoms of PARKINSON’S DISEASE that is inherited and genetic. f) Have you suffered any serious illnesses within the last 5 years? No.  i) Is everyone else living in your household (including lodgers) as far as you know in good health? If not, state nature of illnesseses: DIABETIC.

Here is Emergency Contact Form dated 13.4.2010: Please inset any information that you think is necessary for the HR department to know in case of an emergency. My response: I have genetic inherited PARKINSON’S DISEASE (undiagnosed). As a result I have altered and made changes to my lifestyle to facilitate my conditions. At the same time I try my best to keep out of situations that may trigger and exacerbate the condition. Although I had been prescribed drugs (VALIUM) in the past to control the condition, I prefer to take a holistic approach to coping so I do not get addicted or too reliant on prescription drugs.

I was penalised for becoming an ADVOCATE of INCLUSION,  applying knowledge to identify children and families with diverse and complex needs. As the http://www.ofsted.gov.uk, EYFS cordinator and SENCO at Luton Street. So they can benefit from early intervention strategies. As part of the Department for Education http://www.education.gov.uk/contctus. The Disability Discrimination Act 1995 and Special Educational Needs and Disability Act 2001. I am still facing misunderstandings as my deep concerns are misconstrued to show me in a bad light.

These days I am using my knowledge, values and beliefs to good effects. Hoping my forward thinking visions and aspirations will prevent anyone else going through what I went through in my school life and later into adulthood. I am thriving to stay away from confrontations because I know that lack of knowledge creates ignorance. As I said when I first embarked on studies at Lambeth College and done a placement at Turney Special School – “You cannot tell by looking…” I know exactly what I am talking about on certain matters because I have the experiences to back up my arguments. These days instead of succumbing to the pitfalls associated with conflicts and confrontations. I spend my time writing about my Life Journeys.

Updates – 23.2.2018: I am proud to have my stories on the following websites: 1.  http://www.google.com 2. https://twitter.com/rattynem 3. https://linkedin.com/in/mervelee-tomlinson 4. https://www.facebook.com/public/Mervelee-Myers 5. https://fundraise.cancerresearchuk.org/page/mervelee-myers 6. https://uk.pinterest.com/mervelee/ 7. Crowdfunding to help a Community School in Jamaica raise funds for https://www.just.giving.com/crowdfunding/KathrineUsborne 8. Word Referee.com-referee-Valdin Legister-dyk 9. Flickr-picssr.com/tags/mervelee 10. The World’s Best Photos of Valdin-Flickr Hive Mind 11. flickrhivemind.net/Tags/Valdin/Interesting 12. Hastags for leyf/MostUsedTagsinSocial.com most usedtagsinsocial.com/leyf.aspx 13. http://www.jbsf.org.uk 14. https://www.vmbs.com/ 15. http://www.nurseryworld.co.uk/ 16. https://www.youtube.com/watch?v=ct6Q69YqTXQ.

I give my dad’s GOD the honour and praises for seeing me through as I struggle, because I am still a sceptic. However I am a more tolerant person and I am glad to say my condition has not deteriorated any further from when I left Jamaica over 21 (twenty five – 25+) years ago. I know I have all the signs and symptoms that will never go away, but I am managing. I may have pass on my condition to  one (1) of my children…? I know advancement in medical science have brought hopes to persons like me who have inherited any forms of disabilities and conditions like Parkinson’s.

Updates – 23.2.2018: The Equality Act 2010 http://www.gov.uk/search states that a person has a disability if she has a physical or mental impairment, which has a substantial and long term adverse effect on her ability to carry out normal day-today activities. I managed to work with LEYF from 1.9.2009 getting a CEO Long Service Awards in October 2014. The same time when the CEO and LEYF sanctioned the discrimination that was to leave me with my life in tatters. My Mental Health Conditions of childhood traumas triggered and exacerbated into Post Traumatic Stress Disorders after I got back from burying my MOTHER and transferred to BIB, HOC and New Cross. From where I resigned with a nervous breakdown.

I have been attending the Nursery World Show and SEND Conference before some of these organisations now what are part of the bandwagon that the NWS has become. That’s why I registered for June O’Sullivan Seminar: Quality provision – building a skilled and motivated early years team. True to form some of my Intellectual Properties were been used. I have proof of how I helped to build LEYF brand over the years. But was prevented from moving up the career ladder. And hence the reasons for the discrimination. However I benefitted from the discrimination in that I was advised to seek Cognitive Behavioural Therapy to find out why I react to certain situations the way I do.

I have had the counselling http://www.slam-iapt.nhs.uk/southwark. Attending Dr Kay Matthieson http://www.lindenlearning.org. Seminar: SEND: understanding typical and atypical behaviours. Helped me unlock the final mystery to why I resort to Passive Aggressive Behaviours whenever my disabilities are triggered. You won’t believe that I was assulted at the NWS 2018? And even stranger than fiction, LEYF plotted to use my vulnerability against me at the CEO-MBE June O’Sullivan Seminar on the Saturday. I felt like a caged animal by what they did. But I am sure they have realised they not dealing with an idiot.

After I used the Freedom of Information Act to ask LEYF to give me access to my FILE, I think they are playing a fool of themselves with their action at the NWS over the two (2) days. I will continue writing about the discrimination in two (2) workplaces that ruined my life. The role of https://www.gov.uk/employment-tribunal-decisions/ms-m-myers-v-london-early-years-foundation-2300047-2016, played in making me a victim. How come they did not see any of the evidence in the BUNDLES about the breaching of every laws, legislations and codes of practices and conducts in the Rules of Law from the Slavery Act of 1807?

I am detailing my life in writings so one day my family will get the chance to see me in a different light. And may begin to get a clearer picture of who I am and why I did not become the person I expected to? However I can congratualate myself on my achievements to date of breaking down barriers. When I look on websites and see my efforts I know I am documented as part of history like in Dr Maria Hudson 2012 Research Paper Ref: 01/12. Recommended to ACAS: research@acas.org.uk, http://www.acas.org.uk/researchpapers. Walk for Parkinson’s https://www.parkinsons.org.uk/get-involved/events. London Bridges Challenge events.fundraising@diabetes.org.uk. Cancer Research http://www.justgiving.com/Mervelee-Myers, amongst others.

I can truly say that I refuse to allow LEYF and their cohorts to pin me in a pigeon hole of who they would like me to become to suit their bigotry.  The UNCRC http://www.education.org.uk/boo Article 14 states that it is a basic entitlement of humans to enjoy their rights and freedoms without discrimination on any grounds. So how come LEYF do not have a FILE for me after I worked with them from 1.9.2009 to 27.9.2015? The Employment Appeal Tribunal http://www.justice.uk/tribunals/employment-appeals have some serious facts to look at. Because I don’t know what was going on at http:www.justice.gov.uk/tribunals/employment/claims/responding?

Now I have to be dealing with the Metropolitan Police MD – Southwark Borough Southwark Police Station 323 Borough High Street London SE1 1JL E-mail Godwin Perrot@met.police.uk. Our Reference: PC/4616/17 Sent on behalf of Southwark Professional Standards Champion. If in doubt of who is Mervelee Myers tell them to go back and do the research at http://www.icsouthlondon.co.uk. I won’t even touch on http://www.peaches.co.uk in this.

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6 Comments
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Mervelee Ratty Nembhard
Mervelee Ratty Nembhard Oh Mr Michael Legister can’t believe U never noticed my SLF? Wat di hell was U tinking of mon?

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4y · 

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Mervelee Ratty Nembhard
Mervelee Ratty Nembhard Might have to guh get meself annedda Dress again?

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Rosetta Patten
Rosetta Patten Sorry but I have to say u r one hellever brave girl. I’ll still consider my self ur friend even if a silent one.

1

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Ervin Nembhard
Ervin Nembhard My sister, take it from me. YOU DO NOT HAVE PARKINSON DISEASE.

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Mervelee Ratty Nembhard
Mervelee Ratty Nembhard Wat di hell U know bout PARKINSON DISEASE my Likkle Breda ERVIN JE NEMBHARD?

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Mervelee Ratty Nembhard
Mervelee Ratty Nembhard Me was a pop style pon a certain sumady! Well wat in a Big Rat in a Mouse-Mouse. Can’t see me changing in the distant Future either… dwl?

2 thoughts on “Atypical Parkinsonism Diagnosis 2017

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